NBC News correspondent Richard Engel announces death of 6-year-old son, who had Rett syndrome

In a new piece of news, NBC News chief foreign correspondent Richard Engel shared the sad news Thursday that his 6-year-old son, Henry, has died. Engel and wife were open about the child’s battle with a rare condition.

Sharing the post on Twitter, Engel said that our beloved son Henry has passed away. She had an easy smile and an infectious laugh in her soft blue eyes and always surrounded her with love and she would return it.

Henry was born in September 2015. He was just an infant when his parents first realized he was not reaching developmental milestones, according to a tribute to Henry posted on the Texas Children’s Hospital website.

Through genetic testing, doctors found that he had a mutation in the MECP2 gene. The mutation causes Rett syndrome, a disorder that usually affects girls after their first birthday, robs them of learned skills and leaves them with cognitive deficits of speech. Doctors at the hospital said that he goes with a variety of debility and motor difficulties.

Henry was being treated at Texas Children’s Hospital’s Duncan Neurological Research Institute since 2018. Dr. Huda Jogby of the Institute, which studied Henry’s mutations, described him as special in many ways.

Joghbi said in a statement that ever since his sweet and sweet smile and the way he connected his eyes, his calm fight against this dreaded disease stole my heart.

We will continue to do our best to develop treatments so that we honor their lives. In another tweet on Thursday, Engel said researchers are using Henry’s cells to help cure Rett syndrome.

Engel shared over the years writing essays on Henry about both the joys and heartbreak of the family experience in 2018 and 2019.

Engel shared that he finally got a grandfather from his son and that it was a long time coming, which made it sweet.

His condition progressed and he developed dystonia: uncontrolled shivering stiffness he shared He was in the hospital for 6 weeks but is now home and receiving love from brother Theo.

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